Monday, June 5, 2017

The Cost of Having Breast Cancer and How to Fund It !

Hi, I am the Jive Bunny,

I am 65 years old and have IDC in my left breast; since my birthday in April, I have went through a lumpectomy and node dissection at Women's College Hospital and now it is time for the treatment for my breast cancer at Princess Margaret Cancer Centre in Toronto.
Now we see all our results and appointments online called myUHN and this is my report.

 She has seen Dr. Amir and is tentatively scheduled for TC chemotherapy. She has requested Oncotype DX testing.

We recommended adjuvant radiotherapy to the left breast, 42.4 Gy in 16 fractions to decrease her risk of local relapse by about 2/3, starting about a month after completion of chemotherapy. We went over the details of the logistics, rationale, potential benefits and side effects of radiotherapy, including side effects such as fatigue, radiation dermatitis, radiation pneumonitis, rib fracture, small risk of radiation related cardiac morbidity, radiation pneumonitis, and radiation-induced secondary malignancy, as well as permanent breast/skin changes. She is tentatively scheduled to finish chemotherapy around mid-August and therefore I have booked her back to see me on August 23, but I have asked her to contact my office to move that appointment, should there be any delay in chemotherapy. We have also given her some reading information on radiotherapy.
from a Doctor Han on May 31st:

As they say, the cure is worse than the disease, so I am not looking forward to any of these treatments and their side-effects.

So to try and shake off this having cancer business, I have been gambling at Niagara Falls Fallsview Casino to try and win some money to maybe pay for the fever injections for chemotheraphy costing $2,500.00 each injection for 4 chemotheraphy daycare sessions at PMH starting June 14th and ending August 17th...and then the radiation begins in September 2017.

I have been a gambler for over 20 years, starting with my girlfriend Sunila who would take me gambling to different casinos in our vicinity to play blackjack. I would be there all night stranded
playing the slot machines while she gambled. We stopped being friends when she borrowed $1,000.00 from me and never paid it back. I received a platinum card at Casino Rama and Niagara Falls and would spend all my extra time playing slots, watching concerts and living in Hotel rooms compliments of the house. I did lose, but I won big jackpots as well.
Over the years the slot machines got tighter and became video gaming. I stopped going after my father died for a few years because he thought because of my older sisters that I was a high roller.
But when my best friend was sick with cancer I started gambling again big time; went into debt and never got it back.

On May 26th, I won 4 jackpots and stayed over at the Fallsview hotel at $600.00 a night and the Hilton at $2,000.00 a night , and stayed and played till May 28th; and won in total 7 Jackpots totalling over $3,200.00.  I took home the last jackpot worth $562.75 gambling the rest away.
The Fallsview sent me a cheque for $115.00 for the May play and I went back on the night bus on June 3rd to try my luck again. Well I played my favourite triple flaming sevens all night and morning long and won 2 jackpots worth $ 1,155.00, but lost it all trying to win a third Jackpot. I took home $150.00. So I lost $110.00 of my own money that I took out of the Atm. I was too tired to stay and play, so I had the machine closed down for 1.5 hours and went home on the bus.
The slots are on timers and you are just lucky if you win. I keep on saying the devil made me do it.

When I die I will be playing the slots , watching the concerts and staying in the complimentary hotel rooms, I know that for sure. Until then, I will try and eat well on my Old Age Security and CPP.
My housing is geared to income for now. So I am all set to conquer my breast cancer...at a cost with
side-effects of chemotheraphy and radiation treatments. Who knows what life will bring and we must make the most of every moment.

Saturday, June 3, 2017

To My Beautiful Sisters and Friends

Hi I am the Jive Bunny,

All my life I have been around my beautiful friends and sisters, and now that I have breast cancer, I will see who my beautiful friends and sisters really are and if they really are beautiful to me.

For my 65th birthday, I was told I had IDC, Invasive Ductal Carcinoma and needed a lumpectomy and node dissection on my left breast, well the process of procedures leading up to the operation was horrendous as was the day of the operation. Now, almost 2 months later comes the hardest part the chemotheraphy daycare every three weeks and at the end radiation to cure my cancer. Why did my life of retirement have to start with maybe the end with cancer and treatments for breast cancer that was detected early due to mammograms every two years? Life not only gives you lemons, but a kick in the pants when we become sick.

My first experience with cancer was with my beautiful sister Patricia who had lung cancer at the age of 52. She called me on my Father's Abe's 84th birthday in February 1995 and told me she had lung cancer and told me not to tell anyone. Well, I did tell my Mom and Dad and 3 other sisters as cancer is not something to be kept secret. She had taken care of me all my life being 10 years older than me in a family of 5 girls. I was going to look after her and help her cure her cancer, but in five months she was gone. I held her hand and told her to come into me and I felt her energy when she died come through me. I went outside looked up into the sun and she was gone.
Two months later, my only uncle Allen, died at the age of 64 of heart failure and I was the only one there for him too. My aunt Cecelia was next to pass away of heart failure in 1998, my family was dropping like flies.

Then in 2004, it was my Mother Ollie with liver cancer at the age of 81 she was the last one on her side of the family of Franklins to pass away. I was with her in that old Civic hospital where I was born 52 years earlier for 8 days and nights looking after her by her side. The sisters were fighting and my father who was 94 was frail going through all this suffering. I was with my Mom in the end as she struggled with morphine, just like my sister Pat had to end her life with morphine. Cancer killed my Mother and favourite sister with a morphine overdose. My Father Abe Joseph 5 years later in the same hospital was given a fatal dose of morphine by a nurse on March 20th, 2010, for a simple cut on his hand! My beautiful family ended on that day...

The worse was not over for my beautiful friend, Barb Pratt who suffered from 10 different cancers for over 10 years. I was with her for her last days in a hospice in Toronto, giving her everything she desired, but on November 10th, at 10:10 am 2011, I lost my best friend to ovarian cancer that she suffered with till there was nothing left of her.

Now in 2017, I am battling my own breast cancer and I have hope. My beautiful friends and sisters are with me surrounding me like guardian angels with their cards and e-mails and by phone.

When we are sick and alone, their is no hope, it is friends and family that should be there to help with the process of healing and in the end dying. My mother used to say, "beauty is that beauty does,"
so what you do is what makes you beautiful to others. Love your friends and family, they are all you have.









Monday, May 29, 2017

The Jive Bunny's Mansion: The Jive Bunny's Mansion.

The Jive Bunny's Mansion: The Jive Bunny's Mansion.: Hi, I am the Jive Bunny, We all have dreams of living in a mansion, entertaining all our special friends and relatives, and being Happy. ...

Sunday, May 28, 2017

The Cost of Cancer

Hi I am The Jive Bunny and I have breast cancer, have had the lumpectomy and node dissection and now am facing radiation and chemotherapy...but at a cost.

 I was diagnosed with IDC in March 27th from a yearly mammogram,  had a biopsy; and then all the procedures leading up to the lumpectomy on my left breast and nodes in April 26th just after my 65th birthday on April 9th, 2017. Happy Birthday to me I made it to 65 with cancer.

According to my blood, I have 100% estrogen and progesterone that my body produces acting on my cancer cells. Tamoxifen blocks estrogen from acting on cancer cells, aromatase inhibitors work in a different way from tamoxifen and aromatase prevents the formation of estrogen from other that your body produces.
Possible side effects are hot flashes and joint pain, fatigue, nausea, diarrhea, thinning of the hair, vaginal dryness, less bladder control, difficulty sleeping, diminished sex drive, carpal funnel syndrome and bone loss from taking this medication.
To reduce the risk of fever and you have private health insurance, there is a once in every three weeks
injection under the skin called Neulasta given on the first or second day following chemo. It costs approximately $2,500.00 per injection so a total of 10,000.00 after four chemotherapy daycare sessions.
On May 23rd, I entered Princess Margaret Cancer Centre on University Street in Toronto, Ontario for the first time. I was amazed at the number of people waiting to be served by doctors mostly older patients. I was taken on time by a very pretty assistant and led into a doctors office. A handsome resident explained my cancer to me and then the Doctor came in with the chemo information.
My two tumours from the lumpectomy were low grade and one high grade 111 showing High Grade Invasive Ductal Carcinoma. The Doctor recommended TC chemotherapy to reduce the chance of breast cancer coming back by killing off any microscopic cells that may be present in my body.
T for Taxotere and C for Cyclophosphamide. I was given the option of sending my high grade 3 tumour to California for a cost of $6,000.00 to see if I qualify for this treatment.
I agreed to have my tumour sent to California for the procedure and realized for $6,000.00 I could go with it as I have never been to California.
The side affects of this type of chemotherapy is severe hair loss, tiredness, menopause if still having periods, decreased sense of taste, weight gain, sour mouth, memory loss, and fever. Here is where the $2,500.00 per injection with private health care if you have it comes in.

So all in all I will meet up with my Doctor on June 13th, to find out what happens and then start TC chemotherapy daycare the next day once in every 3 weeks. Radiation therapy will start at least 3 weeks following the last treatment with chemotherapy.

Time will tell if I will be cured of my breast cancer and if I can classify my self as a cancer survivor.

This is a very frightening part of my life when I should be enjoying retirement and not having to battle cancer at such a high cost.




Friday, May 5, 2017

The Jive Bunny: I made it to 65 but now have Breast Cancer

The Jive Bunny: I made it to 65 but now have Breast Cancer: Happy 65th Birthday you have the big C...I am very familiar with Cancer. My boyfriend from 1978 had Penis cancer and passed away in his 30&#...

I made it to 65 but now have Breast Cancer

Happy 65th Birthday you have the big C...I am very familiar with Cancer. My boyfriend from 1978 had Penis cancer and passed away in his 30's; another boyfriend died of Melanoma before the age of 50.

My Sister passed away in five months of lung cancer in 1995 and my poor Mother passed away of liver cancer in 2004 at the age of 81. The most amazing person with Ovarian cancer survived for 10 years was my best friend who passed away in 2011. Well now after a breast cancer scare in 2000 and endometrial cancer in 2015, I was told I had breast cancer called IDC after a mammogram showed cancer cells in the ducts of my left breast. I had the biopsy right away to make sure this would be caught fast.

We all have visions of living a healthy, wealthy and carefree life with a wonderful retirement at 65.
Well my 65th birthday was a series of Women's College Hospital appointments for Pre-operation,
starting on April 13th and a Rapid Genetic Test for BRCA1 & BRCA2 genes for newly diagnosed breast cancer women with Jewish decent. If I tested positive for either of these genes I would have to have both breasts and ovaries removed and my sisters would be told as well. I did find out I was part Ashkenazi Jewish/ Russian/Polish on my Jewish Father's side of the family and British/ Irish/Polish on my Mother's side. The same Jewish genes as Albert Einstein. I always knew my Father was a genius. There was no cancer on my Father's side and no Breast Cancer on my Mother's side.

On Thursday, April 20th I had an MRI at 8:30 in the morning and this was the most uncomfortable procedure ever with breasts hanging down and ear phones on to block out the banging of this machine, also I had metallic pins in my hair and this could have caused big damage to me and the machine.

I missed my Pre-admission at 9:00 am because I was not told it was on the 8th floor, got home and the nurses were on the phone asking me where I was. I was there!

On Monday April 24th, the race was on. Breast Imaging with Ultra Sound and special procedure and Tuesday at 1:30pm was the Pre-Admission finally where they explained all the ways of blocking the pain with injections and filling out more forms. A fire alarm went off at 2:00 pm, my next appointment was at 2:30 and I was able to go to get my Nuclear injection in the breast so they could take pictures of my body in another machine. I could light up the dark with my breasts.

On the morning of my Breast Cancer operation, I was told not to drink after 7:00 am and I drank the last of my pineapple juice at 6:30 am...when I got to the hospital at 8:00 am. I was told I had pineapple juice with pulp and my 11:00 am operation would be moved to 2:00 pm. There I was with a backless nightgown and paper slippers in the waiting room until my MRI and wires into the breast procedure.
What is it about bad nurses that cause pain and seem to love it? I was marked up like I was having plastic surgery all over my left boob with 2 wires hanging out where the tumour was.

I did have my cell phone and at 10:00 am I received a call saying that I tested normal for the Rapid BRCA1 & BRCA2 genes. Breast cancer is the most prevalent cancer among women, annually affecting more the one million women worldwide. Identifying women who carry mutation in BRCA1 and BRCA2 genes is important for cancer prevention of breast, ovarian, fallopian tube and pancreatic cancer. I was relieved for myself and my family that my results were negative or normal.

So the time had come for my operation and block injection and when I was all wired up, I had to pee.
I had never used a bedpan before and it was like peeing the bed. I think I made it all in the bedpan as the nurse said," Yes you really did have to go!" I was rolled into the operating room and the oxygen went over my face." Where would I like to be right now asked the nurse. Scotland I moaned."
I was in my happy place until I woke up at 5:30 pm in the recovery room. My throat was sour from the breathing tube that had been down my throat and I felt no pain as I was on pain killers.

My son Josh had been waiting for me all day and had a sunburn from waiting outside in the sunshine.

The Women's College Hospital is now only a clinic and closes at 7:00 pm and I was the last patient to be rolled out that Wednesday in a wheelchair.
I was glad it was over and must go back for a post-operative appointment on May 15th. I will find out if I am cancer free or not.

There are risk factors that we can't change, such as family history, genetics, being a women and getting older.  You are either lucky or unlucky in my opinion. Maintain a healthier body weight, eat well, be active, quit smoking, learn about harmful chemicals at home and at work, and learn about the benefits and risks of hormone therapy. Living well helps reduce the risk.

Never think you are fine and don't need to be tested annually for a mammogram because that is where cancer rears it's ugly head when you least expect it. Get the tests needed for peace of mind, it could save your life.